My Fibro Blog

My personal journey with fibromyalgia

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Update

June 13th, 2008 · Comments · Causes, Doctors/Centers, Fibromyalgia, Treatment

Okay time for another update of how things are going. After what seems to be about 20 pints of blood we have found that my Vit D levels are way too low, that I might have celiac disease, my calcium levels are low (no surprise as my Vit D levels are low), and then after a few more tests they found out that my PTH is high and my Free Calcium level is High. So what does all this mean, well I am guessing a couple of different things.

First I have cut out all wheat from my diet, and that has been interesting, more about that later. I am making an appointment with a gastroenterologist about my celiac disease and an endocrinologist about maybe having Parathyroid Disease. That doesn’t help my low D levels, but I am guessing that we will get to that, at some points. Oh my test from the OB/GYN came back all okay, so that is one less thing to worry about.

So, how do I feel about all this, I am not sure. It is nice to try to figure out what is going on, but then sometimes it just means more doctors. I am about tired of the doctors, but I know that they are the only way we will ever figure out what is going on.

My doctor says that studies are showing that people with Fibro have low D levels and are having problems with gluten, and that seems to be the case with me. Let’s see what the other doctors have to say, before we know anything really. Will keep you update.

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  • grace_sandierpastures
    Hi Crystal. I found your blog via Shufflegazine. Sorry to hear about Fibro. I have heard of that word so many times but don't really know what it is. BTW, I'm leaving a comment to say that I have also eliminated wheat and gluten from my diet since last year and feeling great! No more migraines and I lost some belly fat too ("some", not all). :-)

    I hope someday there would be a treatment to completely cure Fibro. All the best to you!
  • cnystedt
    Hello Grace,
    Thank you for the comment. Fibro is hard, and people are just now after almost 70 years learning about it. I do hope they find a cure, not just for me but for everyone that has Fibro.

    Isn't it funny how a little thing like gluten can cause so many problems? I do feel better not eating gluten, even though it is hard, when food companies like to hind the gluten LOL Many people would do well to stay away from gluten, if they only knew that was the problem. Good Luck, and keep us posted on how it is going for you.

    Crystal
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