I little of a year ago I started to get these big knots in my arms, legs and back, and no one seems to know what they really are. The knots seem to get bigger and more painful when I am having a flare. Since non of my doctors seemed to know what is causing this, [...]
Entries Tagged as 'Fibromyalgia'
Could XMRV Retrovirus be the cause of Fibromyalgia?
February 6th, 2010 · Comments · Causes, Doctors/Centers, Fibromyalgia, Treatment
Has the Whittemore Peterson Institute found the answers to Fibromyalgia and/or Chronic Fatigue Syndrome? Well in a small study they say that they found a retrovirus in most people with Chronic Fatigue Syndrome, Fibromyalgia, and Multiple Sclerosis.
We have detected the retroviral infection XMRV is greater than 95% of the more than 200 ME/CFS, Fibromylagia, Atypical [...]
Tags: Chronic Fatique Syndrome·Fibromyalgia·Multiple Sclerosis·Neuro-Immune Disease·retrovirus·Whittemore Peterson Institute·XMRV
Fibromyalgia Sucks!
February 6th, 2010 · Comments · Family, Fibromyalgia
I am just going to come right out and say it, Fibromyalgia sucks!
That is right, anything to do with Fibromyalgia or Chronic Fatique Syndrome, is horrible. You never know what will come next and just when you think you might understand this disease, it changes on you. You have to learn that you just can [...]
How low can the iron go?
February 5th, 2010 · Comments · B12, Ferritin, Fibromyalgia, Symptoms, Thyroid, Treatment, Vitamin D, iron
Well it has been a while since I last wrote, but it has been an interesting time. It seems that my iron levels are also affected with Fibromyalgia, and they got really low in November and December. My iron and Ferritin (a protein that stores and releases iron in the body) levels were so low [...]
Update
August 24th, 2009 · Comments · Books, Causes, Doctors/Centers, Fibromyalgia, Symptoms, Treatment
The time that I have been back from my treatment in the US, has been long and hard time. My lower back has been giving me a hard time, and it wasn’t until the last week or so that it has been better. I even went to the ER because I could not [...]
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Treatment half way across the world
August 23rd, 2009 · Comments · Doctors/Centers, Fibromyalgia, Symptoms, Treatment
The treatment in the US was long but short, on the first day, they took what seemed to be all my blood in my body, but that wasn’t too bad. I then saw the doctor, and he explained what they think was going on, what they would find from the test. After about [...]
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Importance of Vitamin D
July 28th, 2009 · Comments · Causes, Fibromyalgia, News
You have been told that you have Fibro, but have you checked your Vitamin D3 levels? Well as I have posted before, my levels were so low that my Dr. ran the test three times the first time we found the level to be between 4 and 9, when a low level is 25. So, [...]
Tags: vitamins
Some days are just better spent in bed
July 27th, 2009 · Comments · Fibromyalgia, Links, Symptoms
I think anyone with Fibro has been in the same place as Bev, and today I was not too far, from having a day much like Bev. People with Fibro some times the safest place for them is the bed, and to get out of that bed, it takes a lot of get up [...]
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No winning with fibro.. just adapting
June 15th, 2009 · Comments · Doctors/Centers, Fibromyalgia, Treatment
Last night on twitter @nursebc1974 posted a line about Fibro, “No winning with fibro.. just adapting.” LOL I think that is so true, because just when we think we have something figured out, something new comes up. you can follow me on twitter @cnystedt.
I would one day like to figure out how to [...]
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Low Vitamin D Levels
June 15th, 2009 · Comments · Fibromyalgia, Symptoms, Treatment
It has been a while since I have posted and I am sorry that I have not posted in such a long time. Between work and not sleeping that much, my time for thinking or writing has been short. I love my job (was promoted in January to Managing Director of our company) [...]
Tags: vitamins
