My Fibro Blog » Links http://www.myfibroblog.com My personal journey with fibromyalgia Wed, 16 Jun 2010 12:45:14 +0000 http://wordpress.org/?v=2.9.1 en hourly 1 Some days are just better spent in bed http://www.myfibroblog.com/2009/07/27/some-days-are-just-better-spent-in-bed/ http://www.myfibroblog.com/2009/07/27/some-days-are-just-better-spent-in-bed/#comments Mon, 27 Jul 2009 16:24:22 +0000 Crystal Nystedt http://www.myfibroblog.com/?p=48 Yet Another Related Posts Plugin.]]>

I think anyone with Fibro has been in the same place as Bev, and today I was not too far, from having a day much like Bev. People with Fibro some times the safest place for them is the bed, and to get out of that bed, it takes a lot of get up and go, to make it through the day. You can find Bev’s great blog at Sassynurse Says… and also on twitter @nursebevw .

I woke up at 8am in a panic because I was afraid I over slept and she missed it. Thankfully I had not! I got up and got some coffee hoping it would help my headache that I was awoke to. I drank about half of it and decided I would straighten my hair so I didn’t embarrass my daughter by going with it in the usual fuzzy ponytail I have been sporting lately. Wow, what a struggle that was.. who would have thought that arms could be so heavy! I finish at about 9:15am and go off to find some clothes that will look ok and still be comfortable. Today is apparently going to be one of those days that even a bra is a pain.

Ok.. so, I’m dressed, find shoes.. got the check book, my purse and go to look for my keys upstairs (my bedroom is in the basement). By this time, I’m ready to lay back down. I feel weak, tired and even breathing seems a chore, but I’m almost there.

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]]> http://www.myfibroblog.com/2009/07/27/some-days-are-just-better-spent-in-bed/feed/ 2 Traveling with Fibromyalgia http://www.myfibroblog.com/2008/12/08/traveling-with-fibromyalgia/ http://www.myfibroblog.com/2008/12/08/traveling-with-fibromyalgia/#comments Mon, 08 Dec 2008 23:44:07 +0000 Crystal Nystedt http://www.myfibroblog.com/?p=45 Yet Another Related Posts Plugin.]]>

We have returned from a visit to the US to be with family for Thanksgiving. It was a wonderful trip but a very busy trip with not much relaxing. Also it was really cold while we were there (which is not normal for this time of the year) and I had to find some warm clothes. One thing that I had to remember quickly was to dress in layers, because while it was cold outside it was really warm inside. I have a hard time with temperature sensitivity, as I go to one extreme to another. Now I just have to get my body clock be in time with Dubai time, this is why I am writing this post at 3:30am and that I have been up since 1am.

Do any of you have any tips on how to travel with Fibro? I am traveling again in a few weeks, and will try to remember the things that I learn on this past trip. Also I have to say that traveling in Business is much easier than economy. I was able to stretch and sleep better on the plane which helped me greatly. You can find more tips at about.com.

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]]> http://www.myfibroblog.com/2008/12/08/traveling-with-fibromyalgia/feed/ 0 Living Well With Chronic Fatigue Syndrome And Fibromyalgia Syndrome http://www.myfibroblog.com/2006/12/12/living-well-with-chronic-fatigue-syndrome-and-fibromyalgia-syndrome/ http://www.myfibroblog.com/2006/12/12/living-well-with-chronic-fatigue-syndrome-and-fibromyalgia-syndrome/#comments Wed, 13 Dec 2006 08:23:51 +0000 Crystal Nystedt http://www.myfibroblog.com/?p=19 Yet Another Related Posts Plugin.]]>

I found a wonderful review of a book about Fibromyalgia and Chronic Fatigue Syndrome, written by Carol & Richard Eustice. While I have not read the book myself for the ones of you looking for my information, it my be worth checking out. You can read the full review at, About.

In this extensive resource about chronic fatigue and fibromyalgia syndrome, author Mary Shomon takes you on a journey starting with her own personal experience. She simplifies vast amounts of information she consumed after reading fifty books, thousands of research articles, talking to dozen of experts, and corresponding with thousands of fellow patients. At age 17, Mary suffered her first bout of serious illness which started her on a quest to wellness.

Pros
  • Tackles two confusing conditions – CFS and fibromyalgia syndrome.
  • Condenses and simplifies information about the CFS and fibromyalgia syndrome.
  • Leads you to create a plan for wellness.
Cons
  • Many theories on CFS and fibromyalgia syndrome make it seem overwhelming – until you read this book.

Description

  • The book helps you understand CFS and fibromyalgia syndrome.
  • Offers risk factor and symptom checklists for CFS and fibromyalgia syndrome.
  • Discusses the difficulty in getting a firm diagnosis for CFS or fibromyalgia syndrome.
  • Discusses a variety of circumstances which affect CFS and fibromyalgia syndrome.
  • Helps you create a plan to wellness.
  • Lists resources, references, and experts for more information about CFS and fibromyalgia syndrome.

Guide Review – Living Well With Chronic Fatigue Syndrome And Fibromyalgia Syndrome

Chronic fatigue and fibromyalgia syndrome have long been poorly understood conditions, both by patients and medical professionals. The good news is that has started to change. CFS and fibromyalgia syndrome can be caused by numerous different triggers. When all the different contributing factors are searched for, recognized, and treated effectively, patients improve significantly and often get well.Mary shows us that there is not one particular trigger for CFS and fibromyalgia syndrome which is common to everyone. There is no definitive list of guaranteed symptoms for CFS or fibromyalgia syndrome. There is no surefire way to get diagnosed, nor one kind of doctor who has all the answers. The plan to wellness must be customized for you.

Mary begins by giving the reader a basic understanding of CFS and fibromyalgia syndrome. She presents checklists for the risk factors and symptoms of CFS and fibromyalgia syndrome. A sample checklist can be found on the book’s website at http://www.cfsfibromyalgia.com. Mary questions if there is any connection between CFS, fibromyalgia syndrome and the following: infection, the immune system, hormones, brain, nervous system, heart, pain, stress, allergens, toxins, sensitivities, sleep, musculoskeletal system, or nutritional imbalances. The book serves as an essential guide to those answers and a vital guide to wellness.

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]]> http://www.myfibroblog.com/2006/12/12/living-well-with-chronic-fatigue-syndrome-and-fibromyalgia-syndrome/feed/ 0 Fibromyalgia 101 http://www.myfibroblog.com/2006/12/12/fibromyalgia-101/ http://www.myfibroblog.com/2006/12/12/fibromyalgia-101/#comments Wed, 13 Dec 2006 08:05:19 +0000 Crystal Nystedt http://www.myfibroblog.com/?p=18 Yet Another Related Posts Plugin.]]>

I found this Fibromyalgia 101 e-course they call it, where they email for the next 7 days to tell you everything about Fibromyalgia.

Better understanding will enhance your ability to manage the condition. We have designed our free newsletter e-course to guide you to a better understanding of fibromyalgia. Learn more about:

  • symptoms
  • diagnosis
  • treatments
  • medications
  • pain relief
  • natural remedies
  • better daily living
  • solving difficult issues
  • research and more
    		•

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    ]]>     http://www.myfibroblog.com/2006/12/12/fibromyalgia-101/feed/ 0     But you don't look sick? http://www.myfibroblog.com/2006/12/11/but-you-dont-look-sick/ http://www.myfibroblog.com/2006/12/11/but-you-dont-look-sick/#comments Mon, 11 Dec 2006 15:41:57 +0000 Crystal Nystedt http://www.myfibroblog.com/?p=17 Yet Another Related Posts Plugin.]]>

    It has been hard trying to find blogs, that deal with Fibromyalgia, but I have found one.?Ç You can read all of the medical news that you can get your hands on, but it is nice to see how every day people deal with it. They have some wonderful tips on how to deal all different things.
    So check out this blog But You Don’t Look Sick?.?Ç I have already added it to my NetNewsWire.

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    ]]>     http://www.myfibroblog.com/2006/12/11/but-you-dont-look-sick/feed/ 0     Risk Factors for Fibromyalgia http://www.myfibroblog.com/2006/12/02/risk-factors-for-fibromyalgia/ http://www.myfibroblog.com/2006/12/02/risk-factors-for-fibromyalgia/#comments Sun, 03 Dec 2006 07:59:37 +0000 Crystal Nystedt http://www.myfibroblog.com/?p=14 Yet Another Related Posts Plugin.]]>

    You may ask yourself if you have any of the risk factors for Fibromyalgia, here is a list of some of the factors.?Ç While no one really knows what causes Fibromyalgia in people, some people do have things in common.

    Here is a list from Brigham and Women?¢‚Ǩ‚Ñ¢s Hospital.
    It is possible to develop fibromyalgia with or without the risk factors listed below. However, the more risk factors you have, the greater your likelihood of developing fibromyalgia. If you have a number of risk factors, ask your healthcare provider what you can do to reduce your risk.

    There are still many questions regarding the exact cause(s) of fibromyalgia, so risk factors are still being identified. Currently, risk factors include:

    Gender

    Although fibromyalgia may develop in men or women, statistics show that women are seven times more likely to develop fibromyalgia than men.

    Age

    People between the ages of 20-60 are at the highest risk of developing the onset of fibromyalgia, although it may occur at any age.

    Genetic Factors

    There is some indication that genetic factors may be involved in the development of fibromyalgia. Studies have shown that people with family members who have fibromyalgia are at a higher risk of developing it themselves.

    Specific Lifestyle Factors

    People who have recently experienced a traumatic physical or emotional event (such as divorce, car accident, etc.) may be at a higher risk of developing fibromyalgia.

    Psychiatric Illness

    While the majority of individuals with fibromyalgia report a history of psychiatric symptoms, many patients do not, and there is no clear evidence that psychiatric illness causes fibromyalgia.

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    ]]>     http://www.myfibroblog.com/2006/12/02/risk-factors-for-fibromyalgia/feed/ 0     National Fibromyalgia Association http://www.myfibroblog.com/2006/11/21/national-fibromyalgia-association/ http://www.myfibroblog.com/2006/11/21/national-fibromyalgia-association/#comments Tue, 21 Nov 2006 11:04:47 +0000 Crystal Nystedt http://www.myfibroblog.com/?p=11 Yet Another Related Posts Plugin.]]>

    The National Fibromyalgia Association is another website that has a lot of information on symptoms to different therapies that may work for you.?Ç This website is a Non-profit organization and you can buy different information tools, books, or you can join as a member.
    You can also register for their free Monthy Online Newsletter.

    Fibromyalgia ONLINE is a free educational resource for patients and healthcare professionals. Produced by the National Fibromyalgia Association (NFA), Fibromyalgia ONLINE brings you the latest news on fibromyalgia and overlapping conditions. Each monthly issue includes:

    • Featured spotlight articles
    • Treatment and coping strategies
    • Breaking medical news
    • Articles on health and nutrition
    • Book recommendations and more!

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    ]]>     http://www.myfibroblog.com/2006/11/21/national-fibromyalgia-association/feed/ 0     Chronic fatigue syndrome http://www.myfibroblog.com/2006/11/21/chronic-fatigue-syndrome/ http://www.myfibroblog.com/2006/11/21/chronic-fatigue-syndrome/#comments Tue, 21 Nov 2006 10:26:44 +0000 Crystal Nystedt http://www.myfibroblog.com/?p=10 Yet Another Related Posts Plugin.]]>

    There are so many things that can have the same symptoms as Fibromyalgia that it is hard for your doctor to know how to help you or just what you have.?Ç This is why so many of us have to go through the long journey to find the answer. One such disease that is very much like Fibromyalgia is Chronic Fatigue Syndrome, and has just been named as being real by the U.S. Centers for Disease Control and Prevention (better known as CDC).?Ç They have started an awareness campaign about chronic fatigue syndrome and now have a dedicated Internet site at http://www.cdc.gov/cfs/.

    This news story can be found at CNN.

    Early diagnosis and treatment of the disease are important for recovery — even though it is not clear what the best treatments are, CDC officials said during a news conference late last week.

    “CFS (chronic fatigue syndrome) is a terrible illness that prevents many people from taking part in everyday activities and participating in the things they enjoy,” CDC Director Dr. Julie Gerberding said.
    Up to 80 percent of people with chronic fatigue do not know they have it, the CDC said. Its causes are unknown but it can cause profound exhaustion, sleep difficulties, and problems concentrating and remembering.

    Flu-like symptoms, including pain in the joints and muscles, tender lymph nodes, sore throat and headaches are also common. “A distinctive characteristic of the illness is a worsening of symptoms following physical or mental exertion,” the CDC said in a statement.

    “Diagnosis is primarily made by taking a patient’s medical history, completing a physical exam and lab tests to rule out other conditions,” it added.

    “The CDC considers chronic fatigue syndrome to be a significant public health concern, and we are committed to research that will lead to earlier diagnosis and better treatment of the illness,” Gerberding said.

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    ]]>     http://www.myfibroblog.com/2006/11/21/chronic-fatigue-syndrome/feed/ 0     http://www.myfibroblog.com/2006/11/21/managing-my-fibromyalgia%c2%a9/ http://www.myfibroblog.com/2006/11/21/managing-my-fibromyalgia%c2%a9/#comments Tue, 21 Nov 2006 10:14:50 +0000 Crystal Nystedt http://www.myfibroblog.com/?p=9 Yet Another Related Posts Plugin.]]>

    Managing My Fibromyalgia?Ǭ© is another website that I have found, that has a lot of information.?Ç It is not my favorite website, but I think that has more to do with how it is layed out, than the information that is there.?Ç :-)

    This is what they have to say about their website…

    The Fibro Help Network?Ǭ© Links page is a compilation of Web sites that offer resources related to fibromyalgia and its related symptoms. Although we cannot endorse any Web site or vouch for the veracity of its content, we are of the opinion that you will find most of interest as relates to the subject of fibromyalgia, helping to deal with fibromyalgia’s symptoms, and its social ramifications.

    If anyone in the fibromyalgia community has a Web site of similar content and would like to exchange links with Managing My Fibromyalgia?Ǭ©, we will consider it. To contact us, please complete the request form at the bottom of this page.

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    ]]>     http://www.myfibroblog.com/2006/11/21/managing-my-fibromyalgia%c2%a9/feed/ 0     Fibromyalgia Network http://www.myfibroblog.com/2006/11/21/fibromyalgia-network/ http://www.myfibroblog.com/2006/11/21/fibromyalgia-network/#comments Tue, 21 Nov 2006 10:04:52 +0000 Crystal Nystedt http://www.myfibroblog.com/?p=7 Yet Another Related Posts Plugin.]]>

    This is another link, Fibromyalgia Network.?Ç They do have some information but if you want more you have to become a member. The cost of becoming a member is $28.00 a year.

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