Here’s a video from Friday’s walkathon, enjoy

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Having great support from your Doctors is great, but you still need more people on your Fibromyalgia Team.

The next part of your team is your support system. Your family can be the ones on the front lines, they are the ones that you can to depend on the most.  On the days when you just can get out of bed, or you just can not wash the dishes, or take care of your children, your family is going to be to help you take care of yourself and take care of everything else.  This can put a lot of pressure on not just yourself but for your family.  There is no easy way to deal with this, but to know that your family is there because they love you, and if you are willing to try your best each day, they will try their best each day too.

Some people do not have this support system, and for them all I can say is, please do your best to find one.  Your support system can be family, friends, or support groups.  We all need help, and we all need some understanding, if we can find these things, then we can work on what we really need to work on, our health.

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No matter when or how you got Fibromylagia, you are different, what might work for me, may not work for.  You could say that just make us more special, but it means that Treatment, is going to be a lot harder.

I am very luck to find doctors that are willing to help me, and to communicate with me as a person.  That is something that has been a long road to finally find, from Scotland, US, and even some time here as well.  My team as I call them, are open to my ideas, and my questions. The one thing that I have learned is that as the sick ones, we have to take some responsible for our health and treatment. After seeing so many doctors and some thinking that I am half crazy and the others, just not having the time to really look at what is going on, you better hold on tight with the one doctor that is there and really wants to help you.  Also I think some doctors like a challenge and Fibromylagia is very challenging.

I hope if you are a Fibromylagia patient, that you can find a doctor that can help and support you, like you need.

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