Has the Whittemore Peterson Institute found the answers to Fibromyalgia and/or Chronic Fatigue Syndrome? Well in a small study they say that they found a retrovirus in most people with Chronic Fatigue Syndrome, Fibromyalgia, and Multiple Sclerosis.

We have detected the retroviral infection XMRV is greater than 95% of the more than 200 ME/CFS, Fibromylagia, Atypical MS patients tested. The current working hypothesis is that XMRV infection of B, T, NK and other cells of the innate immune response causes the chronic inflammation and immune deficiency resulting in an inability to mount an effective immune response to opportunistic infections. (See XMRV paper in Science.)

This discovery opens an entire new avenue of Neuro-Immune Disease related research and our discovery has brought to this field world-renown immunologists and retrovirologists building our team of collaborators to translate our discoveries into new treatments as soon as possible.

I hope, as I know we all do, that they might be able to finally find some of the answers that we are all looking for.

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I am just going to come right out and say it, Fibromyalgia sucks!

That is right, anything to do with Fibromyalgia or Chronic Fatique Syndrome, is horrible.  You never know what will come next and just when you think you might understand this disease, it changes on you.  You have to learn that you just can not do the things you want to do, and you will never be able to things like you did before.  I have never been one to complain about Fibromyalgia, I have just tried to go with the flow or the bumps that it gives me, but I am tired of doing that.

One of the worst thing about Fibromyalgia is that you are not just fighting the disease, you are fighting for treatment, you are fighting for answers, you are fighting for your life (your daily living), you are fighting to be apart of your family and to take care of your family, you are always in a fight for something.  So, if Fibromyalgia doesn’t make you tired, all the fighting will, that I will promise you.

People with Fibromyalgia are fighters, we have to be, if we want a life.  We go to work, when we should just be in bed, we cook dinner, when we should be in bed, we clean house, when we should be in bed, we put a smile on our face, when we should be in bed, we put that 110% in just to get out of bed, just to get to work, and that does not count the 110% we put in at work, just to make it look like we are fine and there are no problems.

Some people still thinks that our only problem, is that we are depressed and that we just need to get over whatever it is that is making us depressed.  Well if you have Fibromyalgia or Chronic Fatigue Syndrome you know that it is much bigger than just being depressed.  For anyone that has a chronic diseases or chronic pain may benefit from talking to a professional, to begin some of the understanding, healing, and coping skills that we all need.

I think I am at the point where I need to learn some of those coping skills, and to let go some of the guilt, of not being able to do everything and the extra burdens I put on my family. It is never a question for me, I know that I will push for tomorrow and to try to get everything done on my list, but the truth is that most likely I am not even going to come close to finishing my list. That is something that I need to accept and understand that this is the way of life now.  I want to live my life the fullness, now I just have to figure out how to do that with my new/old friend Fibromyalgia.

Have you benefited from professional help in dealing with depression or coping skills and Fibromyalgia?

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